Faces of Ankylosing Spondylitis is a website dedicated entirely to the stories of those with AS. Men, women, and children from numerous countries and continents have shared their stories and photos, and we will be sharing some of them here with you with our gratitude to all. You can read all of the stories (there are close to 2,000!) at thefacesofankylosingspondylitis.com
By Jennifer Dye Visscher
Wednesday, January 01, 2014
Hi everyone, my name is Jenna and I have Ankylosing Spondylitis. My story is similar to so many but I’ve had a very difficult time trying to figure out how to put it down on paper. I think my Mom did a really great job summing up the years of looking for answers. She was able to write what I’ve not been able to. Please visit my blog *The Feeding Edge and see my journey through her eyes. I hope you take a moment to read it because seeing my story through the eyes of my mom is the only way I can share it with you all just yet. I need time still – I want to tell the whole story.
My story includes the reason Cookie has saved face number 365 for me. For those of you who don’t know about the Apples… I created one piece of art of an apple every day for an entire year and never once missed a day. That may seem like a silly thing to do and in fact a little crazy but it was what I needed to do as me, Jennifer Visscher. I created each and every one of them as a way to talk about Spondylitis and raise awareness. Below is one of my favorite apples – it shows many people, words, and projects in our community. It pulls us together in one piece. I created this apple on February 12, 2011 or, Day 135. Our community of advocate groups has grown so much this last year so there are some words and groups missing. I’d like to create a new one for Cookie and for Faces of AS. Please let us know what needs to be in our AS Calligram Apple – let’s tell the story together. Sincerely, Jennifer Dye Visscher a.k.a Jenna
"It was important for me to do this, not for myself, but for each one of the Faces on this site and those who are still unknown. I wanted to show the reality of this disease and the courage it takes to live our lives. I wanted to honor those who have Ankylosing Spondylitis, who I admire and respect."
Creator of Faces of AS, SAA Member, and Face 0062
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