When SAA was founded in 1983, there was no support network, no resource for education materials, not even a single pamphlet for people with AS. Today, SAA produces the best informational materials on worldwide developments in AS treatment and research. Through our efforts, we ensure that those affected by spondylitis are not alone. Regardless of location, individuals and their families can find support through SAA and find someone who listens and understands.

Some of SAA's Major Accomplishments

• SAA provided seed money for Dr. John Reveille and Dr. Li Jin of the University of Texas Health Sciences Center at Houston to begin the first major, nationwide genetic stundy of ankylosing spondylitis (AS). Dr. Reveille's grant was funded in year two by the National Institutes of Health (NIH). Now the NIH has invited the SAA, Drs. Jin and Reveille to be considered again for furthering this partnership so that this work can continue and expand. To date, the AS Family Genetic Study has expanded into a collaborative effort involving ten university medical centers, the SAA and the NIH.
  
  The project has already led to the discovery of new regions on at least seven chromosomes implicated in AS. This and future results of the study will help scientists uncover new treatments for the disease.
  
  
• SAA, together with an international group of clinical researches, led the effort to produce a Food and Drug Administration (FDA) Guidance Document on AS, which will speed the development of clinical trials and shorten the time to market for groundbreaking AS treatments.
  
  
• SAA sponsored and developed the first extensive survey among AS patients nationwide. Named the AS Life Impact Survey, the study resulted in major findings never before documented that will enable physicians and SAA to better address the needs of the AS community. The results were presented at the American College of Rheumatology.
  
  
• SAA co-sponsored the first AS symposium in the U.S., aimed at providing both patients and doctors with the latest information in a field widely overlooked at the time.
  
  
• SAA’s co-founder and executive director, Jane Bruckel, BSN, RN, whose spine is fused due to severe AS, testified on her personal experiences with a new biologic drug to encourage the FDA to speed approval of the medication. These new biologics have provided a revolutionary degree of relief for some patients.
  
  

Education and Support for Patients, Educators, Researchers and Clinicians

• Produced the first books, videotapes and pamphlets for AS patients in the U.S.
  
  
• Co-sponsored a four-day international research and educational conference with University of Texas-Dallas bringing together researchers, clinicians, physical therapists and patients.
  
  
• Co-sponsored a four-day conference with NIH to bring together 70 scientists from diverse fields to pool their knowledge.
  
  
• Launched media campaigns with Ed Asner, Dixie Carter and Rico Brogna, resulting in national media coverage of AS.
  
  
• Led the way toward the development of FDA Guidance Documents for Industry - to encourage increased interest in developing new treatments for AS.
  
  
• Sponsored the AS Life Impact Survey to identify the experiences and needs of people with AS.
  
  
• Each year, sponsored multiple education seminars for patients and their families.
  
  
• Provided networking and support systems through support groups and an interactive web site.
  
  

For over 20 years, the Spondylitis Association of America has spoken out on behalf of all who suffer from spondylitis. By making a donation to SAA, you will help us raise funds for much-needed public awareness, education, research, treatment and an eventual cure for the disease. Add your voice to our mission to be a leader in the quest to cure ankylosing spondylitis and related diseases and to empower those affected to live life to the fullest. Together, our voice is louder. Together, we make a difference.