Comparison of Gut Bacteria and Genetic Risk Assessment in Children of Ankylosing Spondylitis Patients

By Spondylitis Association of America

Friday, May 17, 2019

The following is an announcement from SAA about a third party research opportunity. SAA is not affiliated with this study,

 

Researchers at the Spondyloarthritis Research Program at University of California, San Francisco (UCSF) are looking to identify and compare the gut bacteria of children of ankylosing spondylitis parents.

The study aims to identify gut bacteria that may lead to the development of the disease. The study is funded by a grant from the Spondylitis Association of America, and compensation (of $50) is offered for your time.

You may be eligible to participate if:

  • • Are an adult diagnosed with Ankylosing Spondylitis (meeting modified NY criteria), and are HLA B27 positive
  • • Have biological children between the ages of 5-19 years old (with or without ankylos-ing spondylitis)
  • • Are *not* currently taking antibiotics or sulfasalazin

Study Visit Details:

The study requires one visit to UCSF that lasts approximately 1 hour. During the visit, we will ask questions regarding you and your children’s medical history and your chil-dren will be examined by a Pediatric-Rheumatologist. We will collect saliva samples in clinic. You will be provided stool kits to take home and we will provide you with labels to have stool specimens shipped at our expense.

Study Location:

University of California, San Francisco
Arthritis and Rheumatology Clinic
400 Parnassus Avenue
Floor B1, Suite A095
San Francisco, CA 94541

Compensation:

You will be given a check for $50 upon receipt of each stool specimen.

Contact Information:

If you are interested in participating in this study or learning more about it, please con-tact Dr. Lianne Gensler’s research coordinators:

Henna Sawhney henna.sawhney@ucsf.edu**
Maria Castillo maria.castillo@ucsf.edu**
Office Ph: (415) 353-2497 Mon-Fri, 8:30am - 5pm

**e-mail correspondence is preferred, and offers direct contact with study team!

Research plays an important role in advancing our understanding of clinical care and helps lead to improvements in health. UCSF recruits patients to participate in these re-search studies. Participating in research is voluntary. It won’t affect your treatment if you inquire about the study or decide not to participate.

Study PI: Lianne Gensler, MD
IRB Approval: UCSF IRB study #18-26078 – Approved 10/31/2018

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