By Spondylitis Association of America
Helpful Hints is a recurring feature, aimed at sharing our community’s knowledge and experiences. In this fourth installment, we asked our online community, “What advice would you give others newly diagnosed with spondylitis?” We share a sample of responses with our thanks. We hope you find them helpful!
A phase 2 clinical trial assessed the effectiveness and safety of an oral medication, Filgotinib, in patients with active ankylosing spondylitis (AS) who have not responded adequately to, or have been intolerant of, two or more non-steroidal anti-inflammatory drugs (NSAIDs).
On January 15, 2019, the Spondylitis Association of America will launch a dynamic new website for kids and teens impacted by juvenile spondyloarthritis (JSpA), a rheumatic disease that strikes before the age of 16 but may span throughout adulthood. The new website, Spondykids.org, will provide a wealth of educational information and resources for youth living with the disease and their families.
It is with heavy hearts and great sadness that we share the news of the passing of our dear friend, SAA’s former Executive Director, Laurie M. Savage, M.S. FLE. Laurie passed away on Sunday, December 30, 2018, surrounded by her loving family, after her three-year-long battle with cancer. She fought cancer like she did everything else - with optimism and fearlessness - and a determination to not allow it to interfere with her life and passions.
Since its founding more than 35 years ago, the Spondylitis Association of America (SAA) has been at the forefront of funding research for a cure for spondyloarthritis (SpA). Embracing its mission to be the leading national nonprofit in the fight for a cure and to advocate on behalf of all people impacted by the chronic illness, SAA continues to identify and support ground-breaking research projects through its SAA/Bruckel Early Career Investigator Award in AxSpA (ECI) and additional grants for exploratory research.
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