By Spondylitis Association of America
Wednesday, January 16, 2019
On January 15, 2019, the Spondylitis Association of America will launch a dynamic new website for kids and teens impacted by juvenile spondyloarthritis (JSpA), a rheumatic disease that strikes before the age of 16 but may span throughout adulthood. The new website, Spondykids.org, will provide a wealth of educational information and resources for youth living with the disease and their families.
JSpA is a relatively unknown, often misunderstood and underdiagnosed form of juvenile arthritis. Although it primarily affects the joints along the spine, other joints such as the knees, ankles, toes, hips, shoulders, and the ribcage can also be involved. JSpA accounts for almost 20 percent of all types of childhood arthritis and currently has no cure. But we at the Spondylitis Association of America seek to change that and help youth impacted live their best lives.
Estimates indicate that there are less than 300 pediatric rheumatologists currently practicing in the U.S. This shortage of available specialists forces some JSpA patients and their families to travel more than 200 miles for a single visit. That is why the new JSpA website provides a much-needed hub of materials on topics ranging from diagnosis to seeking special accommodations at school to assist in empowering and connecting patients. “There has been a tremendous amount of love and planning going into the launch of this new website,” says Cynthia Rodriguez, MPA, Programs Coordinator at SAA and project manager for the new website. “We are so very proud to have an opportunity to build this online community for our spondyloarthritis youth and their families, and hope to become the safe, positive space youth with JSpA and their families turn to for support, education, helpful resources, and connection,” she adds.
Visit the new website at: spondykids.org
About the Spondylitis Association of America
SAA is the leading national nonprofit that provides educational resources, connections, and the critical emotional support that people living with spondyloarthritis need. SAA is committed to increasing awareness of spondyloarthritis, providing information and support to patients and their families, and funding research to ultimately uncover a cure for the disease.
Visit our careers page for available positions
16360 Roscoe Blvd. Ste. 100Van Nuys, CA 91406
(800) 777-8189 U.S. only
or (818) 892-1616*Please note: This is not a Crisis Hotline. If you are in a life-threatening crisis, please dial 911 for immediate help in the US. Please follow this link for crisis intervention resources.