Studying Roadblocks to Diagnosis in Non-Radiographic Axial Spondyloarthritis (Rheum 2 DX)

By Spondylitis Association of America

Friday, January 24, 2020


Studying Roadblocks to Diagnosis in Non-Radiographic Axial Spondyloarthritis (Rheum 2 DX)

The Spondylitis Association of America (SAA) is conducting a research study to better understand the roadblocks faced by patients in their journey to getting diagnosed with non-radiographic axial spondyloarthritis (nr-axSpA.)

If eligible, you would be invited to participate in a 45-minute phone interview to discuss your journey from onset of symptoms to diagnosis. We are offering $150 for completion of the phone interview in appreciation for your time.

Your input in invaluable to us and will go a long way to helping improve the experiences of other patients, and shorten the time it takes to get diagnosed. Your responses will be kept confidential.

You may be eligible to participate if:

  • • You are 18 years or older
  • • You live in the U.S.
  • • A rheumatologist has diagnosed you with non-radiographic axial spondyloarthritis (nr-axSpA)

Principle Investigator: Dr. Atul Deodhar, MD, MRCP
Project Coordinator: Dr. Sonam Kiwalkar, MD
IRB: Oregon Health and Sciences University (STUDY00020788)

This project has financial support from UCB, Inc.

For more information, and to see if you are eligible to participate, please visit to complete the brief screening survey. You will be contacted if eligible to participate in the phone interview.

Please contact Dr. Deodhar at 503-494-8637 with any questions or concerns about this survey. You may also email Dr. Deodhar at or the project coordinator, Dr. Kiwalkar at at the Oregon Health and Sciences University.


Theme picker

Stay Informed



Visit our careers page for available positions

Contact Us

Spondylitis Association of America

16360 Roscoe Blvd.  Ste. 100
Van Nuys, CA 91406


Information Requests

(800) 777-8189 U.S. only
or (818) 892-1616
*Please note: This is not a Crisis Hotline. If you are in a life-threatening crisis, please dial 911 for immediate help in the US. Please follow this link for crisis intervention resources.

Give With Confidence
Click to verify BBB accreditation and to see a BBB report for Spondylitis Association of America