SAA receives no government funding and relies on the generous donations from individuals to create and maintain the programs and services aimed at improving the futures of the 2.7 million Americans affected by spondylitis.

Quick Facts About Spondylitis

  • AS (ankylosing spondylitis) is arthritis of the spine that strikes young people. The typical age of onset is between 17 and 45.
  • Difficult to diagnose in the early stages, it is the most overlooked cause of persistent back pain in young adults.
  • AS can also damage other joints such as the hips and shoulders, as well as other areas of the body including the eyes, heart and lungs.
  • AS causes pain and spinal stiffness, and, in severe cases, the spine fuses solidly in a forward-stooped posture.
  • As one form of arthritis, it costs the U.S. economy billions of dollars in costs of care and productivity loss.

The Prevalence of Spondylitis

  • The Centers for Disease Control's NHANES study now estimates that at least 2.7 million adults in the United States have axial spondyloarthritis.
  • Ankylosing spondylitis is not a rare disease.
  • AS is more prevalent than multiple sclerosis, cystic fibrosis and Lou Gehrig's disease combined.

The Impact of Spondylitis

The AS Life Impact Survey conducted by the Spondylitis Association of America in 2011 uncovered several key findings on the impact of spondylitis.

  • AS is difficult to diagnose, often taking up to 10 years from the time a patient first experiences symptoms to the time the patient receives proper diagnosis.
  • Six out of ten (61%) reported that they began experiencing symptoms by age 29.
  • More than half (54%) were not diagnosed with AS until at least five years after their symptoms first appeared; three out of ten (30%) endured symptoms for more than ten years before they were diagnosed.
  • Six out of ten (62%) were diagnosed by age 39.
  • One in four (24%) saw five or more health professionals in pursuit of a diagnosis.
  • Six out of ten (62%) were diagnosed by a rheumatologist.

AS Causes Permanent Physical Damage

  • Two out of three (66%) said AS has forced them into a forward-stooped posture to at least some degree.
  • More than half (55%) said their spine had fused (become rigid) at least partially.

AS is a Painful Disease

  • Seven out of ten (71%) of those surveyed said that back pain or stiffness was one of the symptoms that first caused them to seek treatment.
  • Three out of ten (29%) said that when their AS pain was at its worst, they were incapacitated and could not move.
  • Half (51%) said at some point their breathing has been painful or difficult as a result of AS.

AS Causes People to Change Jobs or Stop Working

  • More than four in ten (44%) said they have had to avoid certain careers or jobs because of AS.
  • One in four (25%) said they have had to change their career or job because of AS.
  • One out of six (17%) with AS under age 65 described themselves as "not working." Of those, more than six out of ten said AS is the reason they are not working.
  • One out of eleven (9%) was not working at all because of AS.

AS Greatly Affects Patients' Daily Lives

  • Six out of ten (or more) said having AS is at least somewhat limiting with regard to getting into a car (70%), walking (64%) and having a satisfying sex life (58%).
  • Eight out of ten (82%) said having AS is at least somewhat limiting with regard to getting a good night's sleep.

Patients Try a Variety of Treatments to Help Them Cope with AS

  • More than eight out of ten (83%) had taken prescription medication in the prior year to manage their AS.
  • Almost half (48%) had taken over-the-counter medication in the prior year to manage their AS.
  • Six out of ten (62%) had done yoga, swimming, walking or other sports in the prior year to manage their AS.
  • Six out of ten (59%) said a rheumatologist is the type of physician primarily in charge of treating their AS.

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Contact Us

Spondylitis Association of America

16360 Roscoe Blvd.  Ste. 100
Van Nuys, CA 91406


Information Requests

(800) 777-8189 U.S. only
or (818) 892-1616
*Please note: This is not a Crisis Hotline. If you are in a life-threatening crisis, please dial 911 for immediate help in the US. Please follow this link for crisis intervention resources.

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