Saturday, May 5, 2018 10:30 am- 12:00 pm
Better Health Store Deli Area
305 N. Clippert Ave
Lansing, MI 48912
My name is Erin and I have lived in the mid Michigan area all of my life. Currently I live in Grand Ledge with my husband Matt, son Jake, and daughter Samantha, and several fur babies. I work part time as a site manager for a company that specializes in senior relocation and estate sales for those needing to downsize. I enjoy cooking for my family, walking, going to the beach, reading, social media, and traveling.
I was diagnosed with ankylosing spondylitis in early 2010 after a relatively short, but severe set of symptoms that included fatigue, terrible stiffness, pain in my legs, back, hips, shoulders and neck, weight loss, gastrointestinal changes, and a severe case of Uvitis/Iritis that sent me to the doctor searching for answers and relief. I have been on several medications including Sulfasalizine (which I learned I am severely allergic to) Methotrexate, Enbrel, Humira and now have been on Remicade infusions since May 2011 after a diagnosis of Ulcerative Colitis. I have been managing both conditions much better since being on the Remicade and hope to continue my "magic juice" as long as possible, as it allows me a better quality of life with my family and the ability to do my job that I enjoy!
I am looking forward to helping our Lansing group leader, Dan Wilson, with the Lansing SAA support group by being a listening ear, helping hand, and sharing my experiences with others to help those struggling with their diagnosis find the answers they are seeking. I look forward to meeting new faces and encourage anyone wishing to attend a SAA sponsored meeting to come check us out!
My AS Story: After a trip to the Emergency Room with severe pain and limited mobility on New Year’s morning of 2013, a visit to my primary care physician and a referral to a bone specialist resulted in a positive test for the HLA-B27 gene marker and a diagnosis of Ankylosing Spondylitis (A.S.) The symptoms had affected my life for 16 years prior to my diagnosis, which included Psoriatic Arthritis with a soft bone heal fracture, then years later, Osteoporosis just two months before the A.S. diagnosis. Treatment changed to a more coordinated effort between my new primary care center, a rheumatologist, and continued low impact exercises with pool therapy through “Exclusive Physical Therapy” in Lansing, Michigan.”
Daniel has a marketing, management, and sales background, while having a variety of Non-Profit volunteer experience as a York Rite Mason, a Shriner supporting the Shriner's Children’s Hospitals, as well as supporting the Michigan Masonic Charitable Foundation.
He is looking forward to also assisting SAA with Awareness and Education on the family of related Spondyloarthritis conditions and symptoms in a round-table support group.
Daniel and his wife Cathy have been married 35 years, having two daughters and two grandsons. Daniel enjoys the outdoors, family time, going to the movies, card games, playing chess, as well as golf and bowling.
Starting a spondylitis support group can be a fulfilling and rewarding challenge. The knowledgeable volunteers who lead SAA-Sponsored Spondylitis Educational Support Groups play a vital role by providing a forum for those with spondylitis to connect and offer support. Interested in taking on this role?
16360 Roscoe Blvd. Ste. 100Van Nuys, CA 91406
(800) 777-8189 U.S. only
or (818) 892-1616