Sunday, June 10, 2018
2:00 p.m. - 4:00 p.m.
Spondylitis Association of America
16360 Roscoe Boulevard
Van Nuys, CA 91406
Meetings are from 2pm — 4pm on the second Sunday, roughly every other month. usually on even months (Feb, April, etc)
Please confirm date/time and RSVP to Richard@spondylitis.org
(818) 892-1616 x231
Richard is on staff here at SAA. An SAA member since 1993, he joined our staff in 2012 as our Director of Corporate and Foundation Giving. He has since taken on the additional responsibilities of Associate Executive Director. He came to us with over twenty years experience managing an eclectic array of nonprofits. He has worked with the homeless and impoverished, at an art residency center, at community centers and he has been the Executive Director of a few religious institutions. He earned an MBA in nonprofit management and a BA in Sociology from UCLA.
Diagnosed with AS, Iritis and Ulcerative Colitis. Richard and his wife are both native Angelenos and have two children. Aside from spending time with his family and dog, Richard likes to practice/teach yoga, exercise, garden, attend sports/cultural events, and read.
To discuss any issue you have -related in some way to spondylitis- with others living with some type of spondylitis. We generally have two types of meetings, either 'roundtable' or 'invited speakers'. 'Round table' meetings are interactive conversations. There is ample opportunity to dive deeply into an issue and/or to raise a large number of issues of immediate interest with people in the room. The majority of our meetings will have an invited speaker that will share their expertise and field questions for at least half of the meeting. There is time set aside for private discussions with others around a refreshment table (including home baked) at all the meetings. We've had from 4 - 44 people attend a meeting. There are always people attending for the first time. Lately averaging 11 people attending; unless there is a speaker of particular interest, for which we often have closer to 23 people attend. People with long standing disease as well as people not-yet-diagnosed diagnosed attend. Age of attendees have been from 15 - 70ish. Some people are currently in a great deal of pain, while others are running marathons. Close friends and relatives are welcome to join & fully participate at the meeting, sometimes they join without the person with the disease. People have been extremely good listeners and openly share their experiences and information dealing with the same issue. Over 30 years ago, the first small group meeting (also held in Los Angeles) was comprised of people living with the disease, their loved ones and physicians. That tradition works well for our group. Refreshments are welcome, but there is no need to bring anything. There is no cost to attend. Several people in the group already donate and raise funds for the SAA, you are encouraged to join them, but donations are not solicited at meetings. If you wish to financially support research, awareness, education for medical professionals and patients, and all the programs such as these education/support groups, please join SAA.
Notes from past meetings:
April 2018 | April 2014 | March 2014 | July 2013 | June 2013 | May 2013 | February 2013 | January 2013 | December 2012
The following is a patient-to-patient list of local resources who have been referred to the Los Angeles Education/Support Group of the Spondylitis Association of America by one or more attendees of this group, have been a presenter or speaker at an education/support group meeting or have made it known that they have a special interest in spondyloarthritis and would like to be included in this listing. Information was publicly available at the time the resource was added to the list. The leader may also remove people from this list for any reason. Inclusion of a person in this list should not be interpreted as a representation by SAA concerning that particular person’s competence or professional qualifications. SAA does not specifically recommend any particular physician or person over another. As a patient, your browsing of the following for a listing constitutes a full release of SAA of any and all liability that may arise out of or in connection with treatment by physicians or other persons on this list.
Lauren Alon, LCSW, Psychotherapitst, EncinoCindy Antoun, Acuppuncture, Northridge www.antounacupuncture.comStacy Barrows, PT, Physical Therapist, presented on the Feldenkrais Method www.CenturyCityPT.com Robin Dore, MD Rheumatology, Orange County, St. Joseph Hospital 714 505
Allan Frankel, MD Cannabis therapy speaker Santa Monica www.GreenBridgeMed.comTiffany Fraser, Yoga Instructor, www.TiffanyFraser.comCheryl Grenville, LMFT Pshychologist Dawn Hassmann, Hynotherapist www.dawnHypnotherapy.comAdam Inlander, financial advisor Merrill Lynch 949-721-6105Adam Kreitenberg, MD, Rheumatology, Tarzana www.arthritisconsult.comBen Klinger, Financial strategist Olivia Lee, MD, OphthalmologistCarolyn Martin DC, Chiropractor 818-884-2301Robert Overbaugh, MD speaker on pain management Cancer Treatment Centers of AmericaBoris Ratiner, MD, Rheumatology, Tarzana 818-996-4069 Elin Tsikrikas, CAS, Ayurvedic Specialist Los Angeles firstname.lastname@example.org Tai Venuti, SSDI Disability Help Line 888-841-2126Michael Weisman, MD Rheumatology Beverly Hills www.cshs.orgDavid Yu, MD, Rheumatologist UCLA, Tzu Chee Clinic Alhambra 626-281-3383Cookies
Starting a spondylitis support group can be a fulfilling and rewarding challenge. The knowledgeable volunteers who lead SAA-Sponsored Spondylitis Educational Support Groups play a vital role by providing a forum for those with spondylitis to connect and offer support. Interested in taking on this role?
16360 Roscoe Blvd. Ste. 100Van Nuys, CA 91406
(800) 777-8189 U.S. only
or (818) 892-1616