Saturday, May 19, 20182:00 pm - 4:00 pm
My name is Hilary Jarrow. I live in beautiful Gilbert, AZ with my husband Doug and our two sons, Wyatt and Lincoln. In the last two years I have gone from working full time as a Project Manager in the Construction industry to consulting in the Industry on the training and development front. It has given me a chance to coach my boys’ soccerteams and volunteer at their school while it is still cool to hang out with their mom.
On the AS side, I was diagnosed in 2001 after two bouts of iritis. The ophthalmologist asked if I had ever had back pain? I thought it was a random question from the eye doctor, but I had done gymnastics for 18 years, so back pain had been in my life since my teens. Off to the rheumatologist I went, diagnosis received with a positive HLA-B27 gene, and Enbrel was found to be the medication that finally worked for me. I have been lucky to have found a medication that makes it possible to be active in my kid’s life. I can only hope it keeps working for me.
I wanted to become a group leader, so that I can educate myself better on the disease, understand what others are going through and hopefully help them to keep searching for a treatment plan that will give them the best quality of life possible. There are so many more people affected by AS than I had originally thought. Through our Support Groups and the vast amounts of research being done by Spondylitis Association of American, I can only hope that we find a cure for Ankylosing Spondylitis in my lifetime.
Starting a spondylitis support group can be a fulfilling and rewarding challenge. The knowledgeable volunteers who lead SAA-Sponsored Spondylitis Educational Support Groups play a vital role by providing a forum for those with spondylitis to connect and offer support. Interested in taking on this role?
16360 Roscoe Blvd. Ste. 100Van Nuys, CA 91406
(800) 777-8189 U.S. only
or (818) 892-1616