Tuesday, June 11, 20196:30-7:30pm
Steele Creek Church of Charlotte1929 W Arrowood Rd.Charlotte, NC 28217
If you are in the Queen City area please join our Queen City Spondylitis Support Group Facebook page to connect with other Spondylitis folks in the area: Queen City SAA Group
I started having AS symptoms at the age of 19. Of course, I did not know that it was AS until I was diagnosed 26 years later! I saw several doctors over the years who dismissed my symptoms, and I was misdiagnosed many times. After advocating for myself, I was finally referred to a spine center. It was then that I was finally validated! My pain had a name…Ankylosing Spondylitis. Now, I am finally receiving appropriate treatment and feeling some relief. I am a wife and mother to two amazing children. My son shares my HLA-B27 gene, for which he thanks me often at his medical appointments! My daughter is my best friend and I have a supportive husband who has loved me blindly through all of the pain, tears and misdiagnoses. I could not get through most days without their support. I am a Registered Nurse and I have had to change my career path in recent years due to my AS and the many daily challenges it brings. I have felt the need recently to connect and hear about the experiences of others who deal with the same type of struggles, which has led me to the SAA. I have realized that there are so many people out there who feel like no one understands what they are going through, and as a nurse I know that support is key when someone is dealing with a chronic condition. So, I decided to lead a support group in Charlotte, NC (aka The Queen City) to help provide a local forum where people can share knowledge and experiences, and make connections.
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