Saturday, May 4, 2019
12:30 -3:30 pm
If you can't join us that whole time, that's fine!
We'll be tuning in to the first ever online Global
Spondyloarthritis (SpA) Summit
(thanks to the Spondylitis Association
of America), watching speaker presentations on one or two of several possible
topics and discussing what we've seen as a group. If, while we're meeting, one
of the speakers is online and answering questions, we might be able to submit
some of our own questions.
Note: the Global SpA Summit spans three days, May 3-5, so you're encouraged to register (FREE) and participate in the other days from your computer! Register HERE.
Please send your RSVP to Charis & Roz at Sacramento.Spondyloarthritis@gmail.com.
The Warehouse Artist Lofts (WAL)
1108 R Street, Sacramento, 95811
*Our meeting space is accessed through an entrance on 12th Street (not the front entrance), so please call or text Charis when you arrive to be let in: 252-634-8783
Important info: unfortunately, parking isn't free (unless
you have a disabled placard) on Saturdays. If you'd like to carpool, feel free
to connect with each other i
n our Facebook
or reply to this email letting us know what area you're coming
from and we'll send out your request in the next email.
Charis was diagnosed with Ankylosing Spondylitis in 2013 at the age of 26 after living with symptoms since at least age 13. AS is something like a family heirloom in the Hill family; her father (deceased) had AS as well as her uncle, and possibly her grandfather. Aside from advocating for AS awareness and education through her blog (http://www.beingcharis.com/), on social media, and through other writing and speaking engagements; Charis enjoys spending time with her two cats, sewing, being involved in the Episcopal Church, and attending Burning Man.
Roz, a native San Franciscan, is married and has five adult children and two grandchildren. A navy veteran, she currently resides in a Bay Area suburb where she teaches English as a Second Language (ESL) to adults. She is also on the board of the California Association of Teachers of English to Speakers of Other Languages. She is excited about joining Charis as co-leader of the Sacramento support group because she loves helping people.
AS runs in her family: her late father and brother had the disease, and she was finally diagnosed in February 2018 after having had symptoms for over 25 years. Since her diagnosis, she has participated in support groups in-person and on social media, and she’s become a voracious reader of books and articles about the disease. She wants to use her newfound knowledge of the disease to advocate for herself and other AS patients.
She manages her AS through a combination of a biologic (Enbrel), stretching, water aerobics, massage, topical analgesics, heat, and occasional opioids and anti-inflammatory injections.
She also takes her mind off the disease with her favorite pastimes, which include spending time with her family, listening to music, traveling, and playing cards, dominoes, and pool. She especially enjoys watching standup comedy and satirical news shows, because she believes that laughter is truly the best medicine.
Visit our careers page for available positions
16360 Roscoe Blvd. Ste. 100Van Nuys, CA 91406
(800) 777-8189 U.S. only
or (818) 892-1616*Please note: This is not a Crisis Hotline. If you are in a life-threatening crisis, please dial 911 for immediate help in the US. Please follow this link for crisis intervention resources.