Saturday, January 26, 2019
Please send your RSVP to Charis & Roz at Sacramento.Spondyloarthritis@gmail.com.
**New Meeting Location**The Urban Hive Main Board Room 1601 Alhambra Blvd. Sacramento, CA 95816 Check in at the front desk when you arrive. More Info: The Urban Hive
Logistical notes: Located across from the post office. There is a parking lot.
Charis was diagnosed with Ankylosing Spondylitis in 2013 at the age of 26 after living with symptoms since at least age 13. AS is something like a family heirloom in the Hill family; her father (deceased) had AS as well as her uncle, and possibly her grandfather. Aside from advocating for AS awareness and education through her blog (http://www.beingcharis.com/), on social media, and through other writing and speaking engagements; Charis enjoys spending time with her two cats, sewing, being involved in the Episcopal Church, and attending Burning Man.
Roz, a native San Franciscan, is married and has five adult children and two grandchildren. A navy veteran, she currently resides in a Bay Area suburb where she teaches English as a Second Language (ESL) to adults. She is also on the board of the California Association of Teachers of English to Speakers of Other Languages. She is excited about joining Charis as co-leader of the Sacramento support group because she loves helping people.
AS runs in her family: her late father and brother had the disease, and she was finally diagnosed in February 2018 after having had symptoms for over 25 years. Since her diagnosis, she has participated in support groups in-person and on social media, and she’s become a voracious reader of books and articles about the disease. She wants to use her newfound knowledge of the disease to advocate for herself and other AS patients.
She manages her AS through a combination of a biologic (Enbrel), stretching, water aerobics, massage, topical analgesics, heat, and occasional opioids and anti-inflammatory injections.
She also takes her mind off the disease with her favorite pastimes, which include spending time with her family, listening to music, traveling, and playing cards, dominoes, and pool. She especially enjoys watching standup comedy and satirical news shows, because she believes that laughter is truly the best medicine.
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