The Elmira Support Group

Upcoming Meeting(s)

Next meeting date coming soon!

Topic: Roundtable discussion. Refreshments provided.

Meeting Location

Southern Tier Church of Christ
351 E. Thurston St.
Elmira, NY 14901

Map

Group Leader

Penny Stoner
(607) 426-1632
pennystoneras@gmail.com

About Penny Stoner, Elmira Support Group Leader

I live in upstate New York. I am a teaching assistant in public education who loves working with young children. I am married and have five grown children who are married. I enjoy biking, traveling, reading, quilting and spending time with all or any of my five grandchildren. I am also active in my church teaching Sunday school and helping with a financial peace class that helps people get out of debt.

Ankylosing Spondylitis became part of my life in 2005 when my 17 year old was diagnosed. It came as a total surprise and took a while to diagnose. I had never heard of this inflammatory disease before that but it has become a part of my daily life. I was diagnosed eight years later in 2013. It was a very frustrating time for me as several doctors tried to figure out what was wrong. I actually could not walk for a couple of months during that time. I am happy to say that with the correct treatment I am doing much better! I take it one day at a time and try to not to take things for granted – flare ups can come at the most inopportune time. It is my hope that this support group will provide valuable resources (which I continue to learn about) and encouragement to help anyone who is living with this inflammatory disease.

Want to Start a New Support Group?

Starting a spondylitis support group can be a fulfilling and rewarding challenge. The knowledgeable volunteers who lead SAA-Sponsored Spondylitis Educational Support Groups play a vital role by providing a forum for those with spondylitis to connect and offer support. Interested in taking on this role?

Learn More!

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Contact Us

Spondylitis Association of America

16360 Roscoe Blvd.  Ste. 100
Van Nuys, CA 91406

Email

info@spondylitis.org

Information Requests

(800) 777-8189 U.S. only
or (818) 892-1616
*Please note: This is not a Crisis Hotline. If you are in a life-threatening crisis, please dial 911 for immediate help in the US. Please follow this link for crisis intervention resources.

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