Living with Spondylitis

Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories -- stories sent to us at the Spondylitis Association of America -- and selections from The Faces of Ankylosing Spondylitis project. You will also find episodes of “This AS Life Live!” an online talk show for people with AS hosted by Dan Reynolds – an AS patient and lead singer of the rock band Imagine Dragons.

We’d love your story as well! Send it to us at

Cookie Hopper
Cookie Hopper
This AS Life Live! Season 1: Episode 4
By Cookie Hopper
Face 0026
Face 0026
Jeannette Anne Hayes
By Jeannette Anne Hayes
Face 0126
Face 0126
By Char
Face 0111
Face 0111
Alan Beaulieu
By Alan Beaulieu
Face 1119
Face 1119
By Melissa
Face 1214
Face 1214
Kevin Stevenson
By Kevin Stevenson

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Contact Us

Spondylitis Association of America

16360 Roscoe Blvd.  Ste. 100
Van Nuys, CA 91406


Information Requests

(800) 777-8189 U.S. only
or (818) 892-1616
*Please note: This is not a Crisis Hotline. If you are in a life-threatening crisis, please dial 911 for immediate help in the US. Please follow this link for crisis intervention resources.

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