Living with Spondylitis

Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories -- stories sent to us at the Spondylitis Association of America -- and selections from The Faces of Ankylosing Spondylitis project. You will also find episodes of “This AS Life Live!” an online talk show for people with AS hosted by Dan Reynolds – an AS patient and lead singer of the rock band Imagine Dragons.

We’d love your story as well! Send it to us at

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Face 0405
Michael Tracy Smith
By Michael Tracy Smith
Comedy or Tragedy?
Comedy or Tragedy?
One Heroine's Spiritual Journey to Write Her Own Story
By Helen Scharber
My Weakness, My Strength
My Weakness, My Strength
Amanda’s Ride Up Pikes Peak
By Amanda Carroll
Through Sickness and Health
Through Sickness and Health
Planning a Wedding with Chronic Illness
By Maya Klauber
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Face 0365
Jennifer Dye Visscher
By Jennifer Dye Visscher
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Face 0113
Tyler Hyder
By Tyler Hyder
Triathlon for Ankylosing Spondylitis
By Sallie Marx

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Contact Us

Spondylitis Association of America

16360 Roscoe Blvd.  Ste. 100
Van Nuys, CA 91406


Information Requests

(800) 777-8189 U.S. only
or (818) 892-1616
*Please note: This is not a Crisis Hotline. If you are in a life-threatening crisis, please dial 911 for immediate help in the US. Please follow this link for crisis intervention resources.

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