Living with Spondylitis

Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories -- stories sent to us at the Spondylitis Association of America -- and selections from The Faces of Ankylosing Spondylitis project.

We’d love your story as well! Send it to us at

Face 0058
Face 0058
Amber Panagos
By Amber Panagos
Face 0062
Face 0062
Cookie Hopper
By Cookie Hopper
When It’s Not Growing Pains
When It’s Not Growing Pains
Journey From the Trampoline To Patient Advocacy
By Seth Ginsberg

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Contact Us

Spondylitis Association of America

16360 Roscoe Blvd.  Ste. 100
Van Nuys, CA 91406


Toll Free Hotline

(800) 777-8189 U.S. only
or (818) 892-1616

Give With Confidence

Independent Charities of America