Living with Spondylitis

Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories -- stories sent to us at the Spondylitis Association of America -- and selections from The Faces of Ankylosing Spondylitis project.

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Face 0365

Jennifer Dye Visscher

By Jennifer Dye Visscher

Wednesday, January 01, 2014

Face 0365

Hi everyone, my name is Jenna and I have Ankylosing Spondylitis. My story is similar to so many but I’ve had a very difficult time trying to figure out how to put it down on paper. I think my Mom did a really great job summing up the years of looking for answers. She was able to write what I’ve not been able to. Please visit my blog *The Feeding Edge  and see my journey through her eyes.  I hope you take a moment to read it because seeing my story through the eyes of my mom is the only way I can share it with you all just yet. I need time still – I want to tell the whole story.

My story includes the reason Cookie has saved face number 365 for me. For those of you who don’t know about the Apples… I created one piece of art of an apple every day for an entire year and never once missed a day. That may seem like a silly thing to do and in fact a little crazy but it was what I needed to do as me, Jennifer Visscher. I created each and every one of them as a way to talk about Spondylitis and raise awareness. Below is one of my favorite apples – it shows many people, words, and projects in our community. It pulls us together in one piece. I created this apple on February 12, 2011 or, Day 135. Our community of advocate groups has grown so much this last year so there are some words and groups missing. I’d like to create a new one for Cookie and for Faces of AS. Please let us know what needs to be in our AS Calligram Apple – let’s tell the story together. Sincerely, Jennifer Dye Visscher a.k.a Jenna


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