Since 2016 my wife Kristin has been fighting a relatively unknown disease called Ankylosing Spondylitis. It might sound like a funny name, but AS silently attacks joints and often causes debilitating pain.
We thought we had her condition under control until last August when she was hospitalized for four days, which left her unable to walk. Her health care providers all seemed well-intentioned, but I was frustrated and shocked by how little they seemed to know about AS and its treatments. From this frustration, and as she laid in bed, I sought to learn as much as I could about how I could help her in this endeavor as her husband, partner, friend, and advocate.
That’s when we came across the work of the Spondylitis Association of America. Their mission involves information, education, and support for Kristin and millions of others who grapple with this disease. I decided I could lend my voice and through a series of fundraising initiatives, including the “AS Strong AS Ever” effort, we raised thousands of dollars to help the SAA’s cause.
This year, we have worked directly with the SAA to do something bigger and more-purposeful. To help with the “Still Kicking AS” campaign, I’m asking you to:
Donate what you can. Whether it is $1 or $100, every bit helps the work of the Spondylitis Association of America and their efforts. Our goal is to raise $2,500 this month to support SAA and we are hopeful that, with your help, this goal can be met.
Educate yourself on the signs of AS. We have learned that it is often seemingly small warning signals which go un- or misdiagnosed which can help you or your loved ones avoid pain and suffering.
Share this page with your networks. The money we raise is absolutely important, but so is the awareness of AS and its signs and symptoms.
To learn more about Kristin’s journey, click here to read her story on how she is Still Kicking AS in her daily life.
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