The Faces of Ankylosing Spondylitis

Faces of Ankylosing Spondylitis is a website dedicated entirely to the stories of those with AS. Men, women, and children from numerous countries and continents have shared their stories and photos, and we will be sharing some of them here with you with our gratitude to all. You can read all of the stories (there are close to 2,000!) at thefacesofankylosingspondylitis.com/

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Face 1818

Daniel King

By Daniel King

My memory of that day in 1997 centers around driving home on I-295 in Portland, in the Fore River area; that’s when the words I’d just heard took hold. “You have been diagnosed with ankylosing spondylitis.”

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Face 0026

Jeannette Anne Hayes

By Jeannette Anne Hayes

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Face 0126

Char

By Char

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Face 0111

Alan Beaulieu

By Alan Beaulieu

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Face 1119

Melissa

By Melissa

My name is Melissa and I am 24. I have suffered from AS for an estimated five years, though I was only diagnosed two years ago.

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Face 1214

Kevin Stevenson

By Kevin Stevenson

I began experiencing symptoms around the age of 23. Although I had periodically experienced symptoms prior to then, my first distinct memory was when my roommate, some friends and I went to the movies.

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A Note from the creator of Faces of AS, Cookie Hopper

"It was important for me to do this, not for myself, but for each one of the Faces on this site and those who are still unknown. I wanted to show the reality of this disease and the courage it takes to live our lives. I wanted to honor those who have Ankylosing Spondylitis, who I admire and respect."

—Cookie Hopper
Creator of Faces of AS, SAA Member, and Face 0062

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Contact Us

Spondylitis Association of America

16360 Roscoe Blvd.  Ste. 100
Van Nuys, CA 91406

Email

info@spondylitis.org

Information Requests

(800) 777-8189 U.S. only
or (818) 892-1616
*Please note: This is not a Crisis Hotline. If you are in a life-threatening crisis, please dial 911 for immediate help in the US. Please follow this link for crisis intervention resources.

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