How Can I Advocate on Behalf of the Spondylitis Community?

If you haven't volunteered yet, what are you waiting for? Here are just some of the easy ways you can volunteer to make a difference.

SAA receives no government funding and relies on the generous donations from individuals to create and maintain the programs and services aimed at improving the futures of the 2.7 million Americans affected by spondylitis.

Advocate by Contacting the Federal & State Government

Join in and become an advocate for people living with spondylitis. Together, we can work to increase public awareness, improve access to health care, increase federal research funding to cure spondylitis, and influence public policies that impact the spondylitis community. The link below has information on issues of concern to the spondylitis community and a way to voice your opinion to your representatives.

Thank you, in advance for your support of this effort.

Raise Awareness

Have you ever spoken to someone about your disease and heard, “Spondy What?”  If so, you’re not alone.  If the goal is to hasten early diagnosis, provide programs and services to improve quality of life, and increase funding for medical research aimed at uncovering the causes and ultimately leading to prevention (or even a cure), the first obstacle is answering the question, “Spondy What?”  Share the video below to help spondylitis gain the exposure it deserves. 

Educate Others

Share our animated spondylitis awareness video, “Could Spondylitis be the Cause of Your Chronic Back / Joint Pain?” Send people to our website where they'll find a host of information about AS and related diseases. And use Key Messages to talk about the prevalence and impact of spondylitis.

Distribute Our Training Video for First Responders

SAA developed a training video for emergency first responders to raise awareness about the special needs of spondylitis patients in emergency situations.

Sign up for a Local Health Fair

Interested in exhibiting to raise spondylitis awareness at a local Health Fair? SAA can provide educational and promotional materials and informative talking points.

Contact SAA’s Programs Coordinator, Rachel Zaimont, to learn more and get started. You can reach Rachel at

Join or Start a Support Group

Is there an SAA Sponsored Spondylitis Support Group near you?

If not, would you like to start one? Learn how SAA can help you provide first hand support to someone else who has spondylitis.

Follow SAA on Social Media

Help SAA make a splash on social media. Like us on Facebook and share our page and posts with friends. You will also find us on Twitter, YouTube, and Instagram.

Create a Video About Spondylitis

Create your own brief video or public service announcement about spondylitis. Share your experience and talk about how spondylitis affects your life. Share your video with SAA and we'll post it on our Facebook page and website!

You can send the link to your video to SAA’s Programs Director, Elin Aslanyan, at

Deliver Educational Brochures to Your Rheumatologist

Deliver SAA's Educational Brochures to your rheumatologist's office so they can be distributed to patients.

Become a Research Participant

Stay Informed



Visit our careers page for available positions

Contact Us

Spondylitis Association of America

16360 Roscoe Blvd.  Ste. 100
Van Nuys, CA 91406


Information Requests

(800) 777-8189 U.S. only
or (818) 892-1616
*Please note: This is not a Crisis Hotline. If you are in a life-threatening crisis, please dial 911 for immediate help in the US. Please follow this link for crisis intervention resources.

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