Your Stories

Each individual affected by spondylitis has their own unique story. We at SAA believe that each and every story can be a source of inspiration and empowerment. We’d love your story as well! Send it to us at Programs@spondylitis.org



Yaakov Lewi

Yaakov Lewi

By Yaakov Lewi

My name is Yaakov Aharon Lewi which is Hebrew for Jacob Aaron Levi. I am 42 years of age. Not only does my name have a religious meaning but it's a family legacy going back thousands of years. I'm a native Texan, born in Waco. I am Jewish by faith and Hebrew by blood.

Kristin Cornelius

Kristin Cornelius

By Kristin Cornelius

Part of sharing my story is also admitting I don’t have it all figured out. Yeah, I love to be in control, but as anyone who fights this condition knows you don’t always have the last word. So I will fight, today, tomorrow, and every day.

Rose Bigham

Rose Bigham

Speaking at an FDA Public Meeting on Chronic Pain

By Rose Bigham

This week I flew out to Baltimore (from Seattle! Looong flight!) to attend a public meeting at FDA headquarters in Silver Spring. They held a public meeting to hear directly from chronic pain patients from all over the country about their symptoms, severity, barriers to care, and well – opioids and other alternatives for pain relief. There were about 250 people in attendance consisting of chronic pain patients, caregivers, advocates, some industry, researchers, and FDA staffers.

Kayla Slack

Kayla Slack

By Kayla Slack

I was first diagnosed with ankylosing spondylitis when I was 12 years old. I remember being outside at recess with terrible back pain that would have me almost in tears. I knew there was something wrong and I was right.

Don Markham

Don Markham

By Don Markham

Hello, my name is Don Markham and I was formally diagnosed with ankylosing spondylitis in 2014 after a major flare. Like a lot of us, I had never heard of ankylosing spondylitis (AS) before this diagnoses. I want to share my story and my victories against AS in hopes that others battling AS will find the drive to keep fighting, and to educate the general public.  

Jessica Moreland

Jessica Moreland

By Jessica Moreland

I am 40 years old and I was diagnosed with Ankylosing Spondylitis in spring of 2017. My symptoms began with multiple attacks of Uveitis, an inflammation in the iris of the eye...

Riley

Riley

By Riley Newman

My symptoms began when I was 16 in the year of 2014. I would miss weeks of school because the pain was too much to handle. I was called names and a druggie because I was losing so much weight and it took a huge toll on me.

 

Fighting Together

Fighting Together

By Sara Shaw

The slums of Kolkata birthed me. She left me in a clinic abandoned and alone. That is how my life began.


Wesley

Wesley

By Wesley

Like any good story from my 20s, my battle with ankylosing spondylitis started while drinking with friends.


Summer

Summer

By Summer

My name is Summer. I was diagnosed with AS in 2016 but that was far from the beginning of my journey. It all started 19 years ago, or as best I can figure it did.  It always seemed that some issues explained away my concerns.


Running with AS

Running with AS

By Stacy Bagal

Felecia and the Ankylosaurus

Felecia and the Ankylosaurus

By Felecia Campbell

Hi. My name is Felecia. I’m from Portland, Oregon. I’m a social worker and a songwriter. And this is a little bit about my life...


Escaping the Opioid Jungle

Escaping the Opioid Jungle

By Batya Bilmes Lemler

How can I stop using opioids while I still have chronic pain? Sure, the withdrawal is horrible and we always hear about the joy of making it to the other...


The Price of Pain Relief

The Price of Pain Relief

By Anonymous Author

I am a 37 year old female with ankylosing spondylitis. My symptoms began when I was eight years old and I was finally diagnosed at...

 

Never Give In

Never Give In

By Tariq Gangari

Hillary Norton, MD

Hillary Norton, MD

By Hillary Norton, MD

Hillary Norton, MD is a board certified rheumatologist in Santa Fe, New Mexico and herself an ankylosing spondylitis patient. This is her story.


My Surreal and Deeply Emotional Day

My Surreal and Deeply Emotional Day

By Jim Weatherhead

I did not see this coming. I bubbled up with tears of joy as I left a meeting room this afternoon. Here is the story...


Comedy or Tragedy?

Comedy or Tragedy?

One Heroine's Spiritual Journey to Write Her Own Story

By Helen Scharber

How to tell my story of AS… Is it a tragedy - a story of pain, loneliness and despair? Or is it a comedy, featuring ridiculously incompetent...


Running for Inspiration

Running for Inspiration

By Katie Allen

Just after 11:30 AM on June 2, 2013, I crossed the finish line at the Deadwood Mickelson Trail Marathon in Deadwood, South Dakota. In...


My Weakness, My Strength

My Weakness, My Strength

Amanda’s Ride Up Pikes Peak

By Amanda Carroll

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Spondylitis Association of America

16360 Roscoe Blvd.  Ste. 100
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or (818) 892-1616
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