Each individual affected by spondylitis has their own unique story. We at SAA believe that each and every story can be a source of inspiration and empowerment. We’d love your story as well! Send it to us at Programs@spondylitis.org
By Yaakov Lewi
My name is Yaakov Aharon Lewi which is Hebrew for Jacob Aaron Levi. I am 42 years of age. Not only does my name have a religious meaning but it's a family legacy going back thousands of years. I'm a native Texan, born in Waco. I am Jewish by faith and Hebrew by blood.
By Kristin Cornelius
Part of sharing my story is also admitting I don’t have it all figured out. Yeah, I love to be in control, but as anyone who fights this condition knows you don’t always have the last word. So I will fight, today, tomorrow, and every day.
By Rose Bigham
This week I flew out to Baltimore (from Seattle! Looong flight!) to attend a public meeting at FDA headquarters in Silver Spring. They held a public meeting to hear directly from chronic pain patients from all over the country about their symptoms, severity, barriers to care, and well – opioids and other alternatives for pain relief. There were about 250 people in attendance consisting of chronic pain patients, caregivers, advocates, some industry, researchers, and FDA staffers.
By Kayla Slack
I was first diagnosed with ankylosing spondylitis when I was 12 years old. I remember being outside at recess with terrible back pain that would have me almost in tears. I knew there was something wrong and I was right.
By Don Markham
Hello, my name is Don Markham and I was formally diagnosed with ankylosing spondylitis in 2014 after a major flare. Like a lot of us, I had never heard of ankylosing spondylitis (AS) before this diagnoses. I want to share my story and my victories against AS in hopes that others battling AS will find the drive to keep fighting, and to educate the general public.
By Jessica Moreland
I am 40 years old and I was diagnosed with Ankylosing Spondylitis in spring of 2017. My symptoms began with multiple attacks of Uveitis, an inflammation in the iris of the eye...
By Riley Newman
My symptoms began when I was 16 in the year of 2014. I would miss weeks of school because the pain was too much to handle. I was called names and a druggie because I was losing so much weight and it took a huge toll on me.
By Sara Shaw
The slums of Kolkata birthed me. She left me in a clinic abandoned and alone. That is how my life began.
Like any good story from my 20s, my battle with ankylosing spondylitis started while drinking with friends.
My name is Summer. I was diagnosed with AS in 2016 but that was far from the beginning of my journey. It all started 19 years ago, or as best I can figure it did. It always seemed that some issues explained away my concerns.
By Stacy Bagal
By Felecia Campbell
Hi. My name is Felecia. I’m from Portland, Oregon. I’m a social worker and a songwriter. And this is a little bit about my life...
By Batya Bilmes Lemler
How can I stop using opioids while I still have chronic pain? Sure, the withdrawal is horrible and we always hear about the joy of making it to the other...
By Anonymous Author
I am a 37 year old female with ankylosing spondylitis. My symptoms began when I was eight years old and I was finally diagnosed at...
By Tariq Gangari
By Hillary Norton, MD
Hillary Norton, MD is a board certified rheumatologist in Santa Fe, New Mexico and herself an ankylosing spondylitis patient. This is her story.
By Jim Weatherhead
I did not see this coming. I bubbled up with tears of joy as I left a meeting room this afternoon. Here is the story...
By Helen Scharber
How to tell my story of AS… Is it a tragedy - a story of pain, loneliness and despair? Or is it a comedy, featuring ridiculously incompetent...
By Katie Allen
Just after 11:30 AM on June 2, 2013, I crossed the finish line at the Deadwood Mickelson Trail Marathon in Deadwood, South Dakota. In...
By Amanda Carroll
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