Upcoming Spondylitis Educational Seminar on October 20th in Chicago, IL!

Join SAA on Saturday, October 20, 2018 for an informal and informative seminar featuring rheumatologist Dr. Muhammad Asmin Khan, MD, MACP, FRCP and registered dietician Lara Rondinelli-Hamilton, RD, LDN, CDE. For more information and to register for this event, click on the button below.

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Welcome to the Spondylitis Community

Felecia and the Ankylosaurus

By Felecia Campbell

Tuesday, January 17, 2017

Hi. My name is Felecia. I’m from Portland, Oregon. I’m a social worker and a songwriter. And this is a little bit about my life with AS and how life goes on if you just keep moving.

When I play music, I forget that I have any problems at all, not just AS or any of the diseases it comes with.

It makes my soul dance a little bit.

After a show sometimes, I get a little tired. The brain fog builds up. That’s the hardest part. It helps though because little things in everyday AS life, like remembering to take medications or to sit up straight -- you know -- that memorization is a really good technique to have for music.

Go on lots of walks. Walking is very therapeutic for me. Playing music. Just finding a good chord progression will make my body feel a little less painful.

Hey, did you know the ankylosaurus was a real dinosaur?

I didn’t know that.

It had a fused spine.

Music Infusion

I go there
Grab a warm blanket
Stick a cold needle in my arm
I'm loaded on - Antihistamines and they kill what's left inside of me
I'm going in every 6 weeks and they still remember me
Even though I'm starting to disappear
I'm counting on - 3 days of sleepless nights
Chest pains and bright lights
Stinging my eyes so bad I can't even read
My favorite books sit on shelves waiting to be loved and held
The way this disease holds me
And it's a music infusion
Stick it into me --
Carolina, bring me my pills
Can't always get them refilled
All these scripts spell my name backwards
Have you ever felt so much pain?
You know I don't like to complain
But sometimes I do
I'm too damn -- Little to have all these big words
Infecting me and my world
I've been through hell and back
And it never stops
It never stops
I wake up and find myself right where I started out
Well it's a music infusion
Take it out
Why won't you, won't you take it out --
I feel weak on in the inside
So how can I be strong on outside?
I'm trapped within this body
I can't play but you can't sing the way I do
The way I do
The way I do --


Spondy What?

Spondyloarthritis affects more people than Amyotrophic Lateral Sclerosis (ALS), Multiple Sclerosis (MS), and Rheumatoid Arthritis, yet it remains relatively unknown.

ALS (30,000)
MS (400,000)
Rheumatoid Arthritis (1.3million)
Spondyloarthritis (2.7million)


Our Mission

To be a leader in the quest to cure ankylosing spondylitis and related diseases, and to empower those affected to live their lives to the fullest.

Could I Have

Think your pain may be caused by spondylitis? Watch our new awareness video and take the quiz!

Why Join the Community?

Connect with others because no one should have to face spondylitis alone.

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Learn About Spondylitis

Spondylitis is a relatively unknown disease, but it affects 1 in 100 Americans.

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Recent News

Latest Updates

Inflammatory Arthritis Educational Program in New York City!

Posted September 2018

The Spondylitis Association of America (SAA) and the Hospital for Special Surgery (HSS) are proud to announce a new collaboration...

Read more…
More Articles ›


This AS Life Live!

Posted March 2018

This AS Life Live with Dan Reynolds

Read more…
Learn More ›

Standing Tall For Women With Axial Spondyloarthritis

Posted September 2018

Historically this disease, and especially ankylosing spondylitis (also known as axial spondyloarthritis (axSpA) with x-ray damage) was thought to affect men more commonly than women. However, over the last decade as we recognize the disease earlier and in patients without the classic damage seen on x-ray, we realize this disease is actually equigender.

Read more…
More Issues ›

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