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Welcome to the Spondylitis Community

Felecia and the Ankylosaurus

By Felecia Campbell

Tuesday, January 17, 2017

Hi. My name is Felecia. I’m from Portland, Oregon. I’m a social worker and a songwriter. And this is a little bit about my life with AS and how life goes on if you just keep moving.

When I play music, I forget that I have any problems at all, not just AS or any of the diseases it comes with.

It makes my soul dance a little bit.

After a show sometimes, I get a little tired. The brain fog builds up. That’s the hardest part. It helps though because little things in everyday AS life, like remembering to take medications or to sit up straight -- you know -- that memorization is a really good technique to have for music.

Go on lots of walks. Walking is very therapeutic for me. Playing music. Just finding a good chord progression will make my body feel a little less painful.

Hey, did you know the ankylosaurus was a real dinosaur?

I didn’t know that.

It had a fused spine.

Music Infusion

I go there
Grab a warm blanket
Stick a cold needle in my arm
I'm loaded on - Antihistamines and they kill what's left inside of me
I'm going in every 6 weeks and they still remember me
Even though I'm starting to disappear
I'm counting on - 3 days of sleepless nights
Chest pains and bright lights
Stinging my eyes so bad I can't even read
My favorite books sit on shelves waiting to be loved and held
The way this disease holds me
And it's a music infusion
Stick it into me --
Carolina, bring me my pills
Can't always get them refilled
All these scripts spell my name backwards
Have you ever felt so much pain?
You know I don't like to complain
But sometimes I do
I'm too damn -- Little to have all these big words
Infecting me and my world
I've been through hell and back
And it never stops
It never stops
I wake up and find myself right where I started out
Well it's a music infusion
Take it out
Why won't you, won't you take it out --
I feel weak on in the inside
So how can I be strong on outside?
I'm trapped within this body
I can't play but you can't sing the way I do
The way I do
The way I do --


Spondy What?

Spondyloarthritis affects more people than Amyotrophic Lateral Sclerosis (ALS), Multiple Sclerosis (MS), and Rheumatoid Arthritis, yet it remains relatively unknown.

ALS (30,000)
MS (400,000)
Rheumatoid Arthritis (1.3million)
Spondyloarthritis (2.7million)


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Latest Updates

Clinical Trial Opportunity for Adults with Ankylosing Spondylitis

Posted December 2018

A Phase 3 clinical trial is now recruiting patients over the age of 18 with active spondylitis (AS) to participate.

The purpose of the trial, titled, “Efficacy and Safety of Tofacitinib in Subjects with Active Ankylosing Spondylitis (AS)” is to determine if Tofacitinib is safe and effective in subjects with active ankylosing spondylitis

Read more…
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This AS Life Live!

Posted March 2018

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Foods That Heal, Foods That Can Harm. An Interview With Clinical Nutritionist, Michelle Schirra

Posted November 2018

We sat down with Michelle Schirra, CN, MS to discuss how diet and nutrition can play a role in reducing pain, inflammation, and other spondyloarthritis symptoms. Michelle is part of an allopathic and functional medicine team at WellHealth Medical Center in West Hills, CA. Our thanks to Michelle for lending us her time and expertise.  

Read more…
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