Join SAA on Saturday, October 20, 2018 for an informal and informative seminar featuring rheumatologist Dr. Muhammad Asmin Khan, MD, MACP, FRCP and registered dietician Lara Rondinelli-Hamilton, RD, LDN, CDE. For more information and to register for this event, click on the button below.
By Riley Newman
Wednesday, February 28, 2018
My name is Riley. I was diagnosed with Ankylosing Spondylitis in July of 2016. My symptoms began when I was 16 in the year of 2014. I would miss weeks of school because the pain was too much to handle. I was called names and accused of being a druggie because I was losing so much weight and it took a huge toll on me. Today I am stronger because of it though. Prior to the start of my symptoms I had gotten an ovarian cyst and by the time we found out what it was it had ruptured. No doctor thought that had anything to do with my AS. I was a mystery case and no one knew what to do next. I was trying several different medications for the pain, but sadly after 2 months each medication would stop working for me. I saw specialists, tried acupuncture, and did physical therapy. It wasn't until my neurologist sent me to a rheumatologist in Denver, CO that I was diagnosed. He ran a few tests and within days he knew I had AS. It was a miracle to get an answer and know there was a name for what I was going through. I wasn't being told or treated like I was faking it anymore. Today I am still trying to find the right medication for me and hopefully I will soon.
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Spondylitis is a relatively unknown disease, but it affects 1 in 100 Americans.
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Posted September 2018
The Spondylitis Association of America (SAA) and the Hospital for Special Surgery (HSS) are proud to announce a new collaboration...
Posted March 2018
Historically this disease, and especially ankylosing spondylitis (also known as axial spondyloarthritis (axSpA) with x-ray damage) was thought to affect men more commonly than women. However, over the last decade as we recognize the disease earlier and in patients without the classic damage seen on x-ray, we realize this disease is actually equigender.
We offer a wide variety of resources for members of the spondylitis community, physicians and others who are interested in learning more about spondylitis.
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