By Riley Newman
Wednesday, February 28, 2018
My name is Riley. I was diagnosed with Ankylosing Spondylitis in July of 2016. My symptoms began when I was 16 in the year of 2014. I would miss weeks of school because the pain was too much to handle. I was called names and accused of being a druggie because I was losing so much weight and it took a huge toll on me. Today I am stronger because of it though. Prior to the start of my symptoms I had gotten an ovarian cyst and by the time we found out what it was it had ruptured. No doctor thought that had anything to do with my AS. I was a mystery case and no one knew what to do next. I was trying several different medications for the pain, but sadly after 2 months each medication would stop working for me. I saw specialists, tried acupuncture, and did physical therapy. It wasn't until my neurologist sent me to a rheumatologist in Denver, CO that I was diagnosed. He ran a few tests and within days he knew I had AS. It was a miracle to get an answer and know there was a name for what I was going through. I wasn't being told or treated like I was faking it anymore. Today I am still trying to find the right medication for me and hopefully I will soon.
To be a leader in the quest to cure ankylosing spondylitis and related diseases, and to empower those affected to live their lives to the fullest.
Think your pain may be caused by spondylitis? Watch our new awareness video and take the quiz!
Connect with others because no one should have to face spondylitis alone.
The most comprehensive library of spondylitis information and educational materials.
Spondylitis is a relatively unknown disease, but it affects 1 in 100 Americans.
There are many ways to get involved in the community. Which one’s right for you?
Use our state-by-state list of patient recommended and board certified rheumatologists.
View the Directory
Posted June 2018
Fibromyalgia (FM) is a relatively well-known musculoskeletal disorder characterized by widespread pain, fatigue, and sleep issues. However, few are aware of its comorbidities. The frequent pain and other symptoms normally associated with FM can be further exacerbated when occurring along with ankylosing spondylitis, axial spondyloarthritis (axSpA),psoriatic arthritis (PsA) or rheumatoid arthritis (RA). A
Posted March 2018
We offer a wide variety of resources for members of the spondylitis community, physicians and others who are interested in learning more about spondylitis.
Visit our careers page for available positions
16360 Roscoe Blvd. Ste. 100Van Nuys, CA 91406
(800) 777-8189 U.S. only
or (818) 892-1616