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Welcome to the Spondylitis Community

Riley

By Riley Newman

Wednesday, February 28, 2018

My name is Riley. I was diagnosed with Ankylosing Spondylitis in July of 2016. My symptoms began when I was 16 in the year of 2014. I would miss weeks of school because the pain was too much to handle. I was called names and accused of being a druggie because I was losing so much weight and it took a huge toll on me. Today I am stronger because of it though. Prior to the start of my symptoms I had gotten an ovarian cyst and by the time we found out what it was it had ruptured. No doctor thought that had anything to do with my AS. I was a mystery case and no one knew what to do next. I was trying several different medications for the pain, but sadly after 2 months each medication would stop working for me. I saw specialists, tried acupuncture, and did physical therapy. It wasn't until my neurologist sent me to a rheumatologist in Denver, CO that I was diagnosed. He ran a few tests and within days he knew I had AS. It was a miracle to get an answer and know there was a name for what I was going through. I wasn't being told or treated like I was faking it anymore. Today I am still trying to find the right medication for me and hopefully I will soon.

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Spondy What?


Spondyloarthritis affects more people than Amyotrophic Lateral Sclerosis (ALS), Multiple Sclerosis (MS), and Rheumatoid Arthritis, yet it remains relatively unknown.

ALS (30,000)
MS (400,000)
Rheumatoid Arthritis (1.3million)
Spondyloarthritis (2.7million)

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Our Mission


To be a leader in the quest to cure ankylosing spondylitis and related diseases, and to empower those affected to live their lives to the fullest.




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Spondylitis?

Think your pain may be caused by spondylitis? Watch our new awareness video and take the quiz!

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Connect with others because no one should have to face spondylitis alone.

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Spondylitis is a relatively unknown disease, but it affects 1 in 100 Americans.

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Recent News

Latest Updates

Clinical Trial Opportunity for Adults with Ankylosing Spondylitis

Posted December 2018

A Phase 3 clinical trial is now recruiting patients over the age of 18 with active spondylitis (AS) to participate.

The purpose of the trial, titled, “Efficacy and Safety of Tofacitinib in Subjects with Active Ankylosing Spondylitis (AS)” is to determine if Tofacitinib is safe and effective in subjects with active ankylosing spondylitis

Read more…
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Video

This AS Life Live!

Posted March 2018

Learn More ›

Foods That Heal, Foods That Can Harm. An Interview With Clinical Nutritionist, Michelle Schirra

Posted November 2018

We sat down with Michelle Schirra, CN, MS to discuss how diet and nutrition can play a role in reducing pain, inflammation, and other spondyloarthritis symptoms. Michelle is part of an allopathic and functional medicine team at WellHealth Medical Center in West Hills, CA. Our thanks to Michelle for lending us her time and expertise.  

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Spondylitis Association of America

16360 Roscoe Blvd.  Ste. 100
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