Join us on Saturday, April 13, 2019 in NYC for an informative, patient centered Spondylitis Seminar featuring a Rheumatologist, Occupational Therapist, and Certified Yoga Therapist.
By Riley Newman
Wednesday, February 28, 2018
My name is Riley. I was diagnosed with Ankylosing Spondylitis in July of 2016. My symptoms began when I was 16 in the year of 2014. I would miss weeks of school because the pain was too much to handle. I was called names and accused of being a druggie because I was losing so much weight and it took a huge toll on me. Today I am stronger because of it though. Prior to the start of my symptoms I had gotten an ovarian cyst and by the time we found out what it was it had ruptured. No doctor thought that had anything to do with my AS. I was a mystery case and no one knew what to do next. I was trying several different medications for the pain, but sadly after 2 months each medication would stop working for me. I saw specialists, tried acupuncture, and did physical therapy. It wasn't until my neurologist sent me to a rheumatologist in Denver, CO that I was diagnosed. He ran a few tests and within days he knew I had AS. It was a miracle to get an answer and know there was a name for what I was going through. I wasn't being told or treated like I was faking it anymore. Today I am still trying to find the right medication for me and hopefully I will soon.
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Spondylitis is a relatively unknown disease, but it affects 1 in 100 Americans.
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Posted February 2019
The purpose of the trial is to study the safety and efficacy of Tildrakizumab in those with psoriatic arthritis (PsA), ankylosing spondylitis (AS) or non-radiographic axial spondyloarthritis (nr-axSpA).
Posted March 2018
Posted March 2019
If you’ve been using a drug manufacturer’s copay discount card to help with your out-of-pocket costs for a biologic or other specialty medication, you may soon be in for a surprise. Several large insurance companies and pharmacy benefit managers (PBMs) are implementing new schemes called “copay accumulator programs” that affect how contributions from those same copay cards are applied to your annual out-of-pocket cost requirements.
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