Our CEO, Cassie Shafer, would like to wish you a happy holiday season! From everyone here at SAA, thank you for your support and generosity over the last 35 years.
By Riley Newman
Wednesday, February 28, 2018
My name is Riley. I was diagnosed with Ankylosing Spondylitis in July of 2016. My symptoms began when I was 16 in the year of 2014. I would miss weeks of school because the pain was too much to handle. I was called names and accused of being a druggie because I was losing so much weight and it took a huge toll on me. Today I am stronger because of it though. Prior to the start of my symptoms I had gotten an ovarian cyst and by the time we found out what it was it had ruptured. No doctor thought that had anything to do with my AS. I was a mystery case and no one knew what to do next. I was trying several different medications for the pain, but sadly after 2 months each medication would stop working for me. I saw specialists, tried acupuncture, and did physical therapy. It wasn't until my neurologist sent me to a rheumatologist in Denver, CO that I was diagnosed. He ran a few tests and within days he knew I had AS. It was a miracle to get an answer and know there was a name for what I was going through. I wasn't being told or treated like I was faking it anymore. Today I am still trying to find the right medication for me and hopefully I will soon.
To be a leader in the quest to cure ankylosing spondylitis and related diseases, and to empower those affected to live their lives to the fullest.
Think your pain may be caused by spondylitis? Watch our new awareness video and take the quiz!
Connect with others because no one should have to face spondylitis alone.
The most comprehensive library of spondylitis information and educational materials.
Spondylitis is a relatively unknown disease, but it affects 1 in 100 Americans.
There are many ways to get involved in the community. Which one’s right for you?
Use our state-by-state list of patient recommended and board certified rheumatologists.
View the Directory
Posted December 2018
A Phase 3 clinical trial is now recruiting patients over the age of 18 with active spondylitis (AS) to participate.
The purpose of the trial, titled, “Efficacy and Safety of Tofacitinib in Subjects with Active Ankylosing Spondylitis (AS)” is to determine if Tofacitinib is safe and effective in subjects with active ankylosing spondylitis
Posted March 2018
Posted November 2018
We sat down with Michelle Schirra, CN, MS to discuss how diet and nutrition can play a role in reducing pain, inflammation, and other spondyloarthritis symptoms. Michelle is part of an allopathic and functional medicine team at WellHealth Medical Center in West Hills, CA. Our thanks to Michelle for lending us her time and expertise.
We offer a wide variety of resources for members of the spondylitis community, physicians and others who are interested in learning more about spondylitis.
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